International Myotonic Dystrophy Organization

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Welcome to the International Myotonic Dystrophy Organization
		These pages are devoted to information about Myotonic Dystrophy (DM1 and DM2) and Congenital Myotonic Dystrophy (CMD), both forms of muscular dystrophy. These are also know as dystrophia myotonica or Steinert's disease. There are two types of Myotonic Dystrophy DM1 and a new second type called DM2 or PROMM for Proximal Myotonic Myopathy.

Order Books from IMDO

Membership

A new book, "Myotonic Dystrophy: The Facts" by Dr. Peter Harper was published in summer 2002. This is a wonderful book that contains essential information about Myotonic Dystrophy. It covers a wide range of aspects of the disease explaining in simple terms exactly what the condition is, what the symptoms are and how they can or might develop. It presents tools to find out additional information about taking an active role in treatment. Order your copy today by clicking the read more link below.

TThe International Myotonic Dystrophy Organization (IMDO) publishes a newsletter on a monthly basis. This is done electronically and you may subscribe by sending us an email, or clicking here

. You can also join IMDO by paying a yearly family membership fee. Click the button below for a quick way to join us. We need your support. Please sign up and help us with a $25 donation. This is good for one year and for the entire family!!!

New and Hot Information

We have three new brochures you can download and print here.
General Information about Myotonic Dystrophy
Heart problems in Myotonic Dystrophy
Cataract in Myotonic Dystrophy

	Here it is - hot off the press - the Alert Card for members with Myotonic Dystrophy to carry with them!! It alerts medical and official personnel about the disease and some of its manifestations.
This card has been available in England for a few years and has helped its members immensely. If you would like a card, send us an email with your snail mail information - each family member should have a card, so let us know how many to send to you. Fill out the form: Click here!
	USA National Registry The National Institute of Health has appointed the University of Rochester, Rochester, NY USA as the National Registry for Myotonic Dystrophy.
This registry is going to track all people in the USA who register and also will select for research studies out of these registrants. If you want the latest and greatest information and ability to get into some studies click here for their website.

			Chat Room
		This is the place that you can ask and find answers to your questions about Myotonic Dystrophy and congenital muscular dystrophy. The chat room is formally active at 8 PM Central Standard time on Tuesdays .

Contact Information
You can contact us at the following locations. E-mail is the fastest way....Please fill out the feedback form so that we can make this website even better. The Myotonic Dystrophy Organization gladly accepts donations to support the education of the medical profession consumers and to further the cause of research.


This is a news media site and publishes all the news that's fit to print!

Electronic mail

General Info: info@myotonicdystrophy.org
Webmaster: myotonicdystrophy@yahoo.com

Postal Mail

International Myotonic Dystrophy Organization
PO Box 1121
Sunland, CA 91041-1121
United States of America
(866) 679-7954 (this number is toll free in the USA and Canada)
(818) 951-2311

	Site Limitations Make sure to Read this:
	This page is intended for educational purposes only, to provide an overview of Myotonic Dystrophy for patients, their families, and health care providers.