internation myotonic dystrophy organization
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Female current age 21. She suffered diarrhea until it was investigated at 6 - The cause was bacterial overgrowth in bowel. Treated for 6 months with antibiotics then much better.

Age 12 she had trouble swallowing meat - even when minced - choking

Age 12 -13 Complaints of abdominal pain.

Age 13 - 14 always 'full'; stomach pain; frequent episodes of overflow

Age 14 - 15 - Investigated - Radionuclide scan for gastric emptying very

Age 15 - Oesophagoscopy - PEG inserted (gastrostomy) - Oesophagitis

Age 16 MIC Key (Button) gastrostomy - still some oesophagitis - helped

Still tends to have diarrhea. She is now 41.5Kg (91lb) and 151cm

However although she is quite cheerful she is very weak and tired - we