International Myotonic Dystrophy Organization
 
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Sections
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BOOKS PAMPHLETS FACT SHEETS


On this page we list books, pamphlets and fact sheets that are available.

Books
Myotonic Dystrophy ,by Peter Harper. This book is out of print. We understand that a new edition of this book is in the works. You can obtain this through an interlibrary loan from a local medical school in the USA. This is a technical book and you might need someone with a medical background to understand parts of it. It costs about $85.

A new edition of this book was published in Sept 2001. Here is the ordering link:
Click Here for Link.


MDA Myotonic Dystrophy Pamphlet  (This is a really good one ) You need to order via snail mail...

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Fact Sheets
Housing Adaptation     (597K)
Pamphlet of excessive Sleepiness     (200K)
Pamphlet on Anesthesia     (173K)
Pamphlet on New Families with DM     (240K)
One page sheet on Anesthetics for Medical Professionals     (55K)
Medical fact Sheet Myotonic Dystrophy     (162K)
Medical fact Sheet congenital Myotonic Dystrophy     (245K)
Fact Sheet by MDSG and Peter Harper     (203K)
Alert Card     (90K)
Alert Card one sheet that folds     (200K)
History of Myotonic Group in England     (104K)
Disability Benefits and Tax Credits UK     (649K)
Guide for young People     (859K)
Holidays with young disabled kids     (235K)
Disability Living Allowance     (887K)
Fact Sheet on Speech     (60K)
Information on Genetic Testing     (195K)
Fact Sheet Myotonic Dystrophy from UK     (30K)
Fact Sheet on Congenital Myotonic Dystrophy from     UK (45K)
Booklet about Genetic Testing for Myotonic Dystrophy    
United States National Registry for Myotonic Dystrophy     (80K)
Article on Myotonic dystrophy Feb 2002    

Some of these fact sheets are country specific to the United Kingdom (UK)

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