International Myotonic Dystrophy Organization
 
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Sections
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LINK TO OTHER PAGES
 
  • USA Muscular Dystrophy Association  (Section Ask the experts)    
  • Congenital Muscular Dystrophy Q&A USA MDA    
  • Canadian Muscular Dystrophy Association    
  • National Organization of Rare Diseases (NORD)    
  • Myotonia in other Mammals Myotonic Dystrophy Site    
  • Myotonic Support Group England    
  • Giovanni Naso Homepage    
  • Zachary Winkle   (Congenital Muscular Dystrophy)    
  • National Institute of Health Summary Info    
  • The Muscular Dystrophy Campaign    
  • Muscular Dystrophy - Ireland    
  • Muscular Dystrophy - Northern Island    
  • Muscular Dystrophy Association - Australia - a fact sheet is available    
  • Myotonic Support Group - UK .- a DM notification card is available from this site    
  • Muscular Dystrophy Association - Canada    
  • Muscular Dystrophy - Europe/Netherlands - the bulk of the information on this site is available only in Dutch.    
  • European Myotonic Dystrophy - a very informative site that includes an 'address book' for European experts in DM    
  • Yale Neuromuscular Program    
  • The Neuromuscular Centre review of the disorder    
  • NIDRR tvarious strategies aimed at helping people cope with the effects of DM    
  • European Alliance of Neuromuscular Disorders    
  • Murdoch Children's Research Institute an 'electronic brochure' is available here    
  • The Family Village . Although not specific to muscular dystrophy, this site contains a number of chat rooms for people with a variety of disorders    
  • EMQN - European molecular genetics quality network - genetic testing information    
  • Myotonic Dystrophy Association of Canada    
  • Comprehenisve Site on Myotonic Dystropy    
  • The Logan Paige Foundation Site out of Boston funds genetic testing    
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