International Myotonic Dystrophy Organization
 
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Management of Myotonic Dystrophy
 
 
There are no treatments for Myotonic Dystrophy. Any treatment in the medical world must pass many tests to show it is valid and works. Treatments must stand the test of time and show that they are safe and effective. They must be replicated and have good scientific standing. There is some information on management, however, on "one case" basis that have shown a specific methodology has worked for maybe one person. This does not mean it will work for anyone else or that you should even try it. The information here is just that sort of information. If you wish to get a copy of the study and discuss with your doctor....or local MDA Clinic
 
 

Just be cautious in trying anything you see here. Be skeptical and stay informed.
 
 
  • The effect of nifedipine in the therapy of myotonic dystrophy
  • Two Successful Trials with CoEnzyme Q
  • Regulation of Breathing
  • Nocturnal respiratory failure as an indication of noninvasive ventilation in the patient with neuromuscular disease.
  • Sleep and neuromuscular disease: bilevel positive airway pressure by nasal mask as a treatment for sleep disordered breathing in patients with neuromuscular disease.
  • Effects of high resistance training in patients with myotonic dystrophy.
  • The gastrointestinal changes in dystrophia myotonica
  • Intestinal non-rotation and pseudoobstruction in myotonic dystrophy: case report and review of the literature.
  • Faecal incontinence in myotonic dystrophy.
  • Carrell-Krusen Symposium Invited Lecture-1997. Myotonic disorders in childhood: diagnosis and treatment.
  • A study of repeated lateral pinch grip in myotonic dystrophy.
  • Suppression of ventricular tachycardia by sotalol in myotonic dystrophy.
  • DHEA
  • Selegiline in the treatment of hypersomnolence in myotonic dystrophy: a pilot study.
  • Troglitazone not only reduced insulin resistance but also improved myotonia in a patient with myotonic dystrophy.

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